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Zachary Joseph Heger

June 3, 1992 – May 3, 2022

We Celebrate the Life of Zachary Joseph Heger (Zack)

 

We celebrate the life of Zachary Joseph Heger (Zack), who passed away from complications of Duchenne Muscular Dystrophy (DMD) on Tuesday May 3, 2022 at the age of 29. Zack’s beautiful smile and infectious laugh will always be how he is remembered. His love towards his family was greater than anything.

 

Zack’s love of cars was his first passion. Ask any question about what he thought about any year, make and model car and you could expect an honest answer. Zack was so happy when he was able to design his very own 2020 C8 Corvette.

 

Zack enjoyed video games, Star Wars, Marvel, Legos, his family and a cheeseburger from Wahlburgers. We have been blessed that God chose us to be part of Zack’s family and have a true understanding of the struggles that those with disabilities endure.

 

We will continue our fight for a cure for DMD and support those with disabilities. The Zack Heger Foundation’s next mission will be to create an accessible and pet friendly park in memory of Zack at a site to be determined. We ask all those reaching out to us asking what they can do to join our efforts in lieu of flowers by donating below to www.zackhegerfoundation.org so that all people with disabilities have a fun place to go.

 

Zack leaves behind his Mother and Father: Margie Lamir-Heger and Rodney Heger, his Step-Father: Jack Tierney, his siblings: Charlene Tierney, Meghan Tierney, Ryan Tierney, his Grandmother’s: Anne Lamir and Johanna Heger, many Aunts, Uncles, Cousins and his personal care attendant and best friend Tom Dailey.

 

It is with the greatest appreciation to all of those that have shown so much love and support to Zachary and our family, his legacy will live on.

 

Love,

Rodney & Margie

 

 

Tribute to Zack Heger

Welcome to the Zack Heger Foundation

WELCOME TO the Zack Heger Foundation

Welcome to the Zack Heger Foundation

Help Find a Cure

Our mission is to fund important research to find a cure or treatment for Duchenne, as well as to fund programs that extend, and improve, the quality of life of children afflicted with this disease. Please take a few minutes to watch the video above about our organization.

Zack Heger Starts New Company
To Help Others With Disabilities

EZ Lap Tray

Check it out!

Duchenne Muscular Dystrophy

Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year). Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures. 

Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. The progressive muscle weakness leads to serious medical problems, particularly issues relating to the heart and lungs. Young men with Duchenne typically live into their late twenties. 

Duchenne can be passed from parent to child, but approximately 35% of cases occur because of a random spontaneous mutation. In other words, it can affect anyone. Although there are medical treatments that may help slow its progression, there is currently no cure for Duchenne.